Desmoid Tumor/Aggressive Fibromatosis

People with desmoid tumors are asked to participate in a research study being conducted by Northwell Health.

You may be eligible to participate in this study if you:

  • Are a male or female at least 18 years of age or older
  • Agree to provide archival or new tumor tissue for confirmation of disease
  • Are able to swallow tablets and have no gastrointestinal conditions affecting absorption

You may not participate in this study if you:

  • Have current or chronic history of liver disease or known hepatic or biliary abnormalities (except for Gilbert’s syndrome or asymptomatic gallstones)
  • Have immunodeficiency virus (HIV), Hepatitis B or Hepatitis C
  • Are pregnant or breastfeeding

Contact Information
Zachary Rosenfeld, Study Coordinator
450 Lakeville Road
Lake Success, New York 11042
Phone: 516-734-8977
Email: zrosenfeld@northwell.edu