Patients with Neurofibromatosis Type 1 (NF1)

People with neurofibromatosis are asked to participate in a research study being conducted by Montefiore Medical Center.

Your child may be eligible to participate in this study if he/she:

  • Are a male or female at least 2 years of age or older
  • Has a clinical diagnosis of neurofibromatosis (NF1)
  • Has the ability to swallow capsules whole

Your child may not participate in this study if he/she:

  • Has a history of malignancy associated hypercalcemia
  • Has any clinically significant active or known history of liver disease, or known hepatic or biliary abnormalities
  • Has a history of a positive human immunodeficiency virus (HIV)
  • Has received radiation therapy within the past 6 months

Contact Information
Annette Pedro, Study Coordinator
111 East 210th Street
Bronx, New York 10467
Phone: (718) 741-2356